Can a Person With Advanced Alzheimer’s Disease Avoid Going to a Nursing Home
When someone receives an Alzheimer’s diagnosis, families often wonder if they can keep their loved one at home throughout the disease’s progression. The answer is complicated, but yes, it is possible for some people with advanced Alzheimer’s to remain in their homes with the right support system in place.
The key to keeping someone with advanced Alzheimer’s at home is having a comprehensive care plan that evolves as the disease progresses. This means assembling a network of healthcare professionals, including a primary care physician, neurologist, and potentially a care manager. Mental health support from therapists who specialize in dementia can also help both patients and caregivers navigate the emotional challenges ahead.
In-home care services offer flexibility that can adapt to changing needs. Families can start with a few hours a week of companionship and gradually scale up to 24/7 skilled nursing care as the disease advances. This allows seniors to maintain their independence and stick to personal routines for as long as possible. They can eat their favorite foods, sleep in their own bed, and stay in the familiar environment of their home. Professional caregivers can help with medication management, assistance with daily activities, and specialized dementia care that includes cognitive stimulation activities and structured routines to prevent wandering and confusion.
However, keeping someone with advanced Alzheimer’s at home comes with significant challenges. Family members who serve as primary caregivers, even with professional help, often experience substantial emotional and physical strain. The cost of 24/7 in-home care can become very expensive over time and may eventually exceed the cost of a memory care facility. Additionally, as the disease progresses and safety concerns like wandering or complex medical needs arise, a memory care facility may become the safer option.
Community resources can help ease the caregiving burden. Adult day programs, respite care services, meal delivery, and transportation assistance are available in many communities. Respite care provides short-term care that gives family caregivers a break while ensuring their loved one receives professional attention. These services can be found through local area agencies on aging or Alzheimer’s Association chapters.
Early planning is essential for families hoping to keep a loved one at home. This includes working with an elder law attorney to establish important legal documents like a durable power of attorney for financial decisions, healthcare power of attorney, HIPAA authorization, and an advance directive or living will. These documents ensure someone trusted can make decisions if the person with Alzheimer’s becomes unable to do so.
The GUIDE Model, which began in July 2024, is a nationwide program testing the impact of providing comprehensive services and supports for people with dementia and their caregivers. This model aims to help people with dementia remain safely in their homes and communities longer by preventing or delaying nursing home placement.
Memory care facilities offer an alternative that provides 24/7 supervision and immediate access to medical support. These facilities feature structured activities designed to engage residents cognitively, physically, and socially, including art therapy, music, and gentle exercise. They provide a safe, structured environment with a set daily routine and memory-enhancing activities. Many residential care homes have a homely ambiance with personalized rooms and shared areas that feel like a continuation of home.
The decision between in-home care and a memory care facility ultimately depends on the individual’s specific needs, the family’s capacity to provide care, financial resources, and the level of supervision required. Honestly assessing whether a loved one needs someone present 24/7 and whether family members can handle the physical and emotional demands of caregiving is crucial. Some families find that a combination of in-home care and occasional respite care at a facility works best.
Connecting with support groups is valuable for both the person with dementia and their caregivers. These groups provide emotional validation, practical tips, and a safe space to share frustrations and fears. Many communities offer both in-person and virtual options through organizations like the Alzheimer’s Foundation of America and the Alzheimer’s Association.
While many families hope to provide care at home, advanced Alzheimer’s often eventually requires more intensive support than in-home care can provide. However, with proper planning, professional support, community resources, and a strong care team, it is possible for some people with advanced Alzheimer’s to avoid nursing home placement and remain in their homes for longer than they might otherwise.
Sources
https://cedarcreekassoc.com/blog/long-term-care-for-alzheimers-patients/
https://www.rosecrest.org/blog/planning-after-dementia-diagnosis
https://elevatehospiceaz.com/hospice-care/alzheimer-hospice/
https://www.solace.health/specialty/alzheimers
https://www.assuredassistedliving.com/how-to-keep-family-relationships-strong-with-alzheimer-s
https://www.homewatchcaregivers.com/houston-galleria/about-us/areas-we-serve/heights
