Why is my grandmother with dementia refusing to go to sleep, afraid she’ll wake up somewhere else?

Grandma’s Bedtime Fears: Understanding Dementia and Sleep Troubles

If your grandmother with dementia is refusing to go to sleep because she’s afraid of waking up somewhere else, you’re not alone in facing this challenge. This behavior is actually quite common among people with dementia, and there are several reasons behind it.

As dementia progresses, it often affects a person’s sleep patterns and their sense of time and place. Your grandmother might be experiencing something called “sundowning,” which is a state of confusion and anxiety that tends to worsen in the late afternoon or evening[1]. This can make bedtime particularly stressful for her.

The fear of waking up in an unfamiliar place stems from the memory loss and disorientation that come with dementia. Your grandmother might not always recognize her surroundings, even if she’s in her own home. This uncertainty can be scary, especially when it’s time to sleep[1].

Dementia can also disrupt the body’s internal clock, leading to changes in sleep patterns. Some people with dementia may find themselves wide awake at night and sleepy during the day[1]. This shift can make it harder for your grandmother to settle down at bedtime.

It’s important to remember that these fears and behaviors are not your grandmother’s fault. They’re symptoms of the changes happening in her brain due to dementia. Showing patience and understanding can go a long way in helping her feel more secure.

To help your grandmother feel more comfortable at bedtime, try to establish a consistent routine. This might include calming activities before bed, like listening to soft music or looking at family photos. Keep her sleeping environment familiar and comfortable, with nightlights if needed to reduce confusion if she wakes up during the night[3].

Avoid arguing with her about her fears. Instead, offer reassurance and gentle reminders about where she is. You might consider leaving notes in her room to remind her of her location when she wakes up[3].

If sleep problems persist, it’s a good idea to consult with her doctor. There might be underlying issues contributing to her sleep difficulties, such as sleep apnea or restless leg syndrome, which are common in older adults with dementia[5].

Remember, your grandmother’s refusal to sleep isn’t stubbornness – it’s a reflection of the confusion and fear she’s experiencing due to dementia. With patience, understanding, and some practical strategies, you can help her feel more secure and hopefully improve her sleep.