Why is my mother with dementia terrified of the dark, calling it “the empty place”?

Dementia can cause changes in perception and behavior that may seem strange or frightening to both the person experiencing them and their loved ones. Your mother’s fear of the dark and calling it “the empty place” is not uncommon for someone with dementia.

As dementia progresses, it can affect how the brain processes visual information, especially in low-light conditions. This can make it difficult for your mother to recognize her surroundings or make sense of what she sees in the dark. The darkness may appear more intense or threatening to her than it does to others[1].

The term “the empty place” could be your mother’s way of describing how the darkness feels to her. It might represent a sense of emptiness, loneliness, or disorientation that she experiences when her visual cues are limited[1]. This perception can be frightening and may trigger anxiety or agitation.

People with dementia often experience changes in their sleep patterns and circadian rhythms. As evening approaches, they may become more confused, anxious, or agitated – a phenomenon known as “sundowning”[1][2]. This can contribute to a fear of darkness and nighttime.

Hallucinations are also common in some forms of dementia, particularly Lewy body dementia[3]. Your mother might be experiencing visual hallucinations that are more pronounced or disturbing in the dark, leading to her fear.

To help your mother feel more comfortable, try these strategies:

1. Ensure adequate lighting, especially during evening hours and at night. Use nightlights in hallways and bathrooms[1].

2. Maintain a consistent routine, particularly around bedtime, to reduce anxiety and confusion[2].

3. Provide reassurance and comfort when she expresses fear.

4. Consider using familiar objects or photos in her room to create a sense of security.

5. Consult with her doctor about her symptoms, as they may be able to suggest treatments or strategies to manage her fear and anxiety[1][2].

Remember, each person with dementia experiences the condition differently. What works for one person may not work for another, so it may take some trial and error to find the best ways to help your mother feel safe and comfortable.